What is HS? Video Transcript

[LESLIE]
I think it's important for other people to understand the chronic and systemic issues that come with HS, because there can be a lot of shame, there can be a lot of ridicule, and there can be a lot of judgment.

[LINDA]
So when I first saw my symptoms of HS, I was 13.

[LESLIE]
I was in my late teens to early 20s.

[MARCUS]
I believe I was 12 at the time when I got my first one, yeah. I had some abscesses…

[MARCUS]
…and nodules that were under my arm.

[LESLIE]
At first, for the symptoms, I just saw my regular primary care physician. He said it would clear up on its own. It was a natural occurring thing that happened sometimes.

[MARCUS]
They just assumed that because I was overweight, or it was a hygiene situation, that’s what was causing the issues.

[LINDA]
Do some soap and water, and you'll be fine. There were just kept telling me the same thing over and over again.

[MARCUS]
The symptoms continued to get worse, and I finally asked a couple of friends of mine that had similar body types, and this was something they didn't have to deal with. So once I saw that, and I started to question you know, “Well hey, how come they don't have it? If this is what that is?”

[LESLIE]
At the time, you don't really understand that you're being misdiagnosed, and it fills you with a sense of failure and of a sense of dread that a lot of the responsibility for your condition is put on you during misdiagnoses that you're not being clean enough or you are not eating well enough, or you are not doing something enough.

[MARCUS]
It took a long time for me to finally get the correct answers.

[LESLIE]
I would not let up on that I wanted to be referred and got into a dermatologist and he diagnosed me within 10 minutes.

[MARCUS]
When I first heard the term, HS, hidradenitis suppurativa, I had no idea what that was. It was completely foreign to me. But once I started going down that rabbit hole, trying to figure everything out, it opened my eyes to a whole new thing.

[LINDA]
My dermatologist described HS as a inflammatory skin disease that can affect different parts of my body.

[LESLIE]
The reason people develop HS is unclear, but scientists think your genetics could be one of the contributing factors. It's not your fault. It's not my fault. It's nobody's fault. It's a chronic condition.

[LINDA]
I knew I needed to change something when my HS symptoms were getting worse.

[LESLIE]
And that was very much the case for me. It was progressively getting more severe.

[MARCUS]
Over the years they just became more frequent. It just started to become overwhelming.

[LESLIE]
Looking back on my choice to take HUMIRA, it was a big decision to take, but I'm really grateful I did.

Safety Considerations

HUMIRA can lower your ability to fight infections, including tuberculosis. Serious, sometimes fatal infections and cancers, including lymphoma, have happened; as have blood, liver, and nervous system problems, serious allergic reactions, and new or worsening heart failure. Before treatment, get tested for TB. Tell your doctor if you’ve been to areas where certain fungal infections are common, and if you’ve had TB, hepatitis B, are prone to infections, or have flu-like symptoms or sores. Don’t start HUMIRA if you have an infection.

Please see additional Important Safety Information on this web page.